{"id":43445,"date":"2024-12-11T23:02:14","date_gmt":"2024-12-11T21:02:14","guid":{"rendered":"https:\/\/www.mladibl.com\/?p=43445"},"modified":"2024-12-11T23:02:35","modified_gmt":"2024-12-11T21:02:35","slug":"humanitarna-akcija-za-uvodenje-skrininga-na-spinalnu-misicnu-atrofiju-kod-novorodencadi","status":"publish","type":"post","link":"https:\/\/www.mladibl.com\/?p=43445","title":{"rendered":"Humanitarna akcija za uvo\u0111enje skrininga na spinalnu mi\u0161i\u0107nu atrofiju kod novoro\u0111en\u010dadi"},"content":{"rendered":"\n<p>\u200bPod visokim pokroviteljstvom predsjednika Republike Srpske Milorada Dodika,\u00a0 26.12.2024. godine, u Administrativnom centru Vlade Republike Srpske, odr\u017ea\u0107e se 15.\u00a0donatorsko ve\u010de u okviru humanitarne akcije \u201e S ljubavlju hrabrim srcima&#8221;.\u00a0<\/p>\n\n\n\n<p>Na inicijativu&nbsp;Saveza za rijetke bolesti Republike Srpske tema ovogodi\u0161nje akcije je uvo\u0111enje skrininga na spinalnu mi\u0161i\u0107nu atrofiju (SMA) kod novoro\u0111en\u010dadi u Republici Srpskoj.&nbsp;<\/p>\n\n\n\n<p>U okviru akcije, u periodu od 10. do 31. decembra 2024. godine, aktivan je M:tel humanitarni broj 1411, a pozivom na ovaj&nbsp;broj gra\u0111ani mogu da podr\u017ee akciju sa&nbsp;1 KM i na taj na\u010din daju svoj doprinos cjelokupnoj akciji.&nbsp;<br>Nosilac projekta je Univerzitetski klini\u010dki centar Republike Srpske &#8211; Zavod za klini\u010dku laboratorijsku dijagnostiku.<\/p>\n\n\n\n<p>Spinalna mi\u0161i\u0107na atrofija (SMA) je rijetka, ali progresivna i smrtonosna neuromi\u0161i\u0107na bolest. Djeca sa SMA se ra\u0111aju bez SMN1 gena, a bolest se manifestuje postepenom, ali progresivnom atrofijom mi\u0161i\u0107a i gubitkom osnovnih \u017eivotnih funkcija kao \u0161to su hodanje, varenje hrane, gutanje i disanje.&nbsp;<\/p>\n\n\n\n<p>Uvo\u0111enjem testiranja na spinalnu mi\u0161i\u0107nu atrofiju (SMA) pro\u0161iruje se postoje\u0107i program skrininga novoro\u0111en\u010deta, a omogu\u0107ava se rana dijagnostika, te\u00a0ranije zapo\u010dinjanje i bolji ishodi lije\u010denja spinalne mi\u0161i\u0107ne atrofije.<\/p>\n\n\n\n<p>Preuzeto sa: <a href=\"https:\/\/vladars.rs\/sr-SP-Cyrl\/Vlada\/Ministarstva\/MZSZ\/media\/vijesti\/Pages\/akcija-s-ljubavlju-hrabrim-srcima-za-sma-skrining-2024.aspx\" target=\"_blank\" rel=\"noreferrer noopener\">Vlada RS<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"<p>\u200bPod visokim pokroviteljstvom predsjednika Republike Srpske Milorada Dodika,\u00a0 26.12.2024. godine, u Administrativnom centru Vlade Republike Srpske, odr\u017ea\u0107e se 15.\u00a0donatorsko ve\u010de<\/p>\n","protected":false},"author":1,"featured_media":43442,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"om_disable_all_campaigns":false,"_monsterinsights_skip_tracking":false,"_monsterinsights_sitenote_active":false,"_monsterinsights_sitenote_note":"","_monsterinsights_sitenote_category":0,"footnotes":""},"categories":[2],"tags":[742,2404],"class_list":["post-43445","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-vijesti","tag-humanitarna-akcija","tag-s-ljubavlju-hrabrim-srcima"],"jetpack_featured_media_url":"https:\/\/www.mladibl.com\/wp-content\/uploads\/2024\/12\/Humanitarna-akcija-za-uvodenje-skrininga-na-spinalnu-misicnu-atrofiju-kod-novorodencadi.jpg","amp_enabled":true,"_links":{"self":[{"href":"https:\/\/www.mladibl.com\/index.php?rest_route=\/wp\/v2\/posts\/43445","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.mladibl.com\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.mladibl.com\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.mladibl.com\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.mladibl.com\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=43445"}],"version-history":[{"count":1,"href":"https:\/\/www.mladibl.com\/index.php?rest_route=\/wp\/v2\/posts\/43445\/revisions"}],"predecessor-version":[{"id":43446,"href":"https:\/\/www.mladibl.com\/index.php?rest_route=\/wp\/v2\/posts\/43445\/revisions\/43446"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.mladibl.com\/index.php?rest_route=\/wp\/v2\/media\/43442"}],"wp:attachment":[{"href":"https:\/\/www.mladibl.com\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=43445"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.mladibl.com\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=43445"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.mladibl.com\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=43445"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}